I took Michael to the children's hospital yesterday. He had a ct scan to check and make sure his shunt for hydrocephalus is still working well. It is. Which is WONDERFUL! But doesn't explain why his seizures have changed and happen several times a day.
He also visited with a spasticity team to determine what needs to be done with his right foot/leg since he tippy toe walks with it. Surgery.
Other than that: my birthday came and went. Though I don't know if it counted. My dining room clock's hands stopped turning 2 minutes before my birth time. Seriously. Kinda creepy. BUT, I'm wondering if the universe's birthday gift to me was to stay 40 for another year. What do you think? ;)
I have wanted to come back and write a post for a while, and I have a couple incomplete posts, but I haven't been very verbose. Truth be told, going to the physiatrist makes my anxiety go off the charts. I'm not sure why it bothers me so much, I mean, I can take other doctor's visits, why not that one?! But it does. And I pull my head into my shell and want to be left alone. In fact, any talk of Michael's CP makes me want to cry. I am a pretty strong lady... until I think of Michael's problems. Then I turn into jell-o.
I hope that all is going well with all of you. I haven't come by visiting lately. Sorry about that. I'll be better. Until we get closer to surgery, then I'll probably pull into my shell again. I hope you understand and forgive me.